A new room and a new way to think
Lorelei came home from the hospital last week to an entirely new bedroom courtesy of the wonderful people (Brett Brinkley, Natalie Hancock and Taylor Hau) at Designer's Brew. These women took on the secret "Lorelei" project early in the summer but had to wait until Lorelei's transplant actually began so they could do the work while Lorelei was away at the hospital. Lorelei's speedy recovery caused them to have to do much of the work in the last 24 hours but it was perfect when Lorelei came through her door. She exclaimed "My room is from Pinterest!" It was the most amazing gift. There are many shelves to house all of her Prayer Polish! We understand the room design was funded by the donations of many. Thank you. (Pictures are below.)
Yesterday Dr. Selby said Lorelei could remove her mask and put in her contacts. (Yes, she'll still need to be careful as her immune system recovers, but not having to wear a mask in public is a big relief.) Today Lorelei's central line was removed. No more dialysis catheters hanging from her chest!After ten plus months of having some form of medical infusion device in her chest, she finally feels normal. (She embraced the five scars on her chest as badges of honor long ago.)
So, where do we go from here?
That's not exactly what we were hoping to hear. We were really hoping we could hear very soon the words "your cancer is in remission," but we must wait at least four more weeks to see Dr. Geister who will order the appropriate scans to determine this. Likely he'll order a CT scan first. And, if anything abnormal shows up on that scan (which is likely due to the nature of Lorelei's bulky Hodgkins) she'll have a PET scan. The time between transplant and that scan will reduce the odds of any false positive results. Sometimes as a malignant tumor dies certain cells that "eat up" the dead tumor will remain active and give a false positive read on a PET scan. We don't want that, so we'll gladly wait. Once we get the word that Lorelei's cancer is in remission we'll rejoice and begin the plan for radiation.
It's weird to feel for the first time in ten months that she's not actively "fighting" cancer. Some cancer patients have a difficult time with that transition. Lorelei's been catching herself lately. Like when the nurse this morning asked what kind of cancer caused her to need the central line they were about to remove. She said "I have Hodgkin's Lymphoma. I mean, I HAD Hodgkin's Lymphoma." She's trying to reframe her mind for the belief that she's been healed of the disease.
"Now faith is the substance of things hoped for, the evidence of things not seen. "(Hebrews 11:1)
The last of the photos below shows Lorelei's "life verse" painted on her wall. This was Lorelei's favorite Bible verse long before she was diagnosed with cancer but it seems even more appropriate now. Isn't it amazing that God prepared her heart for this journey long before He told her to take it?
Posted on Thu, November 15, 2012
by Andrea Decker