Plans change...a lot

Dec 18, 2012 3:39 PM We met with my radiologist today and one of the things we covered was my biopsy. It was proving to be a rather difficult surgery, because the lymph node is underneath my collar bone and pretty deep. My thoracic surgeon could do the job, but first we discussed the different treatment plans based on the possible results of the biopsy: 1) biopsy comes back positive for Hodgkins and we would do radiation at a dosage of 40 gray or 2) the biopsy comes back negative, and at the risk of a false negative having missed the node, we do a dosage 40 gray. No matter the outcome, the treatment plan looks the same. So my group of doctors has decided to spare me another (and pretty serious) surgery. We are going to do regular radiation and not proton therapy (aka proton radiation). Proton radiation is super precise. Normally that is great because you can spare organs and concentrate on what is malignant. In my case, the tumor seems to change a little too frequently for me to be comfortable with proton. We would run the risk of not irradiating a cancerous area. Sorry if that's too in depth.. Nonetheless. Regular radiation it is!! The next steps are leading up to getting radiation started. I'll do a PET/CT which will show any cancerous activity and the exact location of any tumors, allowing my doctors to draw up the radiation fields. I think I'll also do a pulmonary test to check the base line of my lung function. These will most likely happen after the new year. Pray with me.. New year, new results!!!

1 comment (Add your own)

1. Her Yorkinesses Mom wrote:
I have had to run through this scenario many times over many decades for myself and others. Where you end up at the same treatment plan no matter the outcome of a test which itself is distressing. All sounds very well thought out and wise.
Unlikely our paths will ever cross in the real world but want you to know the girls and I continue to pray for you and our thoughts are with you. We are definitely on Team Lorelei. New Year, new results!!!!

Thu, December 20, 2012 @ 2:31 PM

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